Thursday, February 21, 2008

Cheese and Crackers




Not everyday, but fairly often this is all that is all that is to be seen or heard from Jonas for hours on end.  But when something gets his attention he's more than willing to put the games down.  Today, for instance, when I announced that I would be serving cheese and crackers shortly (a favorite snack around here) Jonas popped up from super mario and insisted on helping me "make" the cheese.  He (helped) cut the cheese and arranged the plate.  It was genuinely helpful and I was very appriciative.




Sunday, February 10, 2008

Skeleton In A Coffin



This is a Skeleton In a clear coffin.




It's being guarded by these guys and this machine.  Jonas thinks this is an incredibly awesome "set" he made.
I think there is something more to this that hasn't been explained to me.  Something about the skeleton's evil powers, I suspect.

Monday, February 4, 2008

National Mystery Musem! (er, uhh, I mean Natural History)

Even in my infinite wisdom and skill at preparedness, I somehow failed to have the foresight to charge the camera's battery before our somewhat impromtu trip to the Natural history museum (or as Jonas called it, the "National Mystery Museum" which never ceases to crack me up!)  Thus I have no pictures to show for it.  However, my ever-ready supermama friend, Anna kiss, (whom we went with) had her camera, so I will direct you to her blog to see how it went.

Saturday, February 2, 2008

Lavinia's Birthday Bash!

Highlights from Lavinia's Birthday party!



It was a Fancy Dress party!



 Lots of people came.







Jonas found a way to be in the middle of the party and still be in his own world at the same time.



 Birthday (cup)cake(s)!  Yay!  Lavinia is four!

Friday, February 1, 2008

Riding Horses



This was a while ago, but I've just now gotten to blogging it.
We are so fortunate as to have a professional equestrian in the family. My sister Rachel trains horses in dressage and teaches lessons, as well as competing with her own horses and other peoples'. It's a whole thing.  
Though Jonas has grown up with her horses around and available, he's still not very comfortable with them. Lavinia, on the other hand, doesn't have any fear or common sense (such as, you don't walk under the horse!)




This
 is HotRod Lincoln.  
Isn't his headband pretty?  We're having our lessons on HotRod.  He's sweet as pie.  We love him to death!  He loves us back, too.  



Here
 Lavi eagerly awaits her turn.  "It's not fair!" She insists, which is just silly because it will be perfectly fair when her brother has finished and he has to wait around in boredom.  Plus, we're unschoolers, and "fair" isn't what life is about.  She'll catch on eventually.
 


This
 is Jonas look really unenthused about his lesson / pony ride.  What's his deal?



Ringo
 on the other hand, is thrilled to have a ride.  Well, no, not really, he probably felt the same way as Jonas, but he knew better than to hop off.  Believe it or not, Ringo actually spends most of his days running with the big dogs at the barn.  He's quite horse savvy.



Jonas
 is much happier to be on the ground. He flat out refused to touch the horse at all, but he got really excited about the ride, after a while. He seemed to feel better once he figured out how to "control" the horse a little. I think with time he could really like this. I'm sure that the actual riding is very therapeutic for him. He was all mellow afterward.



Finally
 she gets the much anticipated turn!  She was a nervous at first, but she lost all fear pretty quickly.



Look
 at this big girl!  She's so grown up and proud of herself!




She
 gave HotRod a much appreciated hug and kiss after her ride.  




Here's
 Rachel getting HotRod ready to go back in his stall.  This part was dreadfully dull, until they got to give HotRod (and friends!) peppermint candies, carrots, apples, and hay!  Though Lavi got carried away with this, it was pretty interesting for them to communicate with the horses.  They could tell right away which horses wanted hay, and which ones were disappointed that it wasn't another apple.



Monday, January 28, 2008

About Jonas and SPD/SID


Jonas has always been a very high needs child. His babyhood was
rough because he was so easily "overstimulated" and once he was,
there was no going back. The world seemed to be packed full of crazy
people who thought it was ok to come up to a baby and touch his
face. Friends, family, and strangers would frequently ignore my
ardent warnings not to touch his plump little cheeks. Amazingly,
even after witnessing his hellatious reaction they would still
dismiss my instructions.
We had lots of trouble with breastfeeding in the first few weeks.
Nipple confusion was our main problem, and even up until he weaned
(at 2 years old) he still preferred my thumb over nursing.

I knew right away that I had to be very careful with this baby. He
had to be dressed a certain way, wearing certain clothes. I had to
drastically change what I ate because he reacted so terribly to some
foods he got through my milk. He had to be handled very specifically
(and very rough!) and swaddled and carried tightly in a sling. He
had to be patted so hard, and bounced so rough and so fast. He had
to sleep on my chest, and when he woke in the night I would nurse and
sing and pat him roughly and rock back and fourth. He almost always
had to be walked and jiggled around while I nursed him. How did I know
things had to be done this way? Why, he would scream his little
lungs out when I didn't. He'd freak out when new people entered the
room, when he heard and unexpected sound, and often for no
discernible reason at all. As much as he loved his daddy, and was
soothed by his voice, I was usually the only person to be able to
comfort him and calm him down. In fact, he screamed bloody murder
when he was handed to someone else.

I was labeled an overprotective mom when he was a newborn, and
through his toddelerhood, and even later in childhood I'd still be
seen as such. In truth, I was overly protective. I was terrified
that when things didn't go just right I'd have an uncontrollable and
inconsolable child on my hands. This is still an issue, but now I
know the whys and hows, and to a certain extent, so does he.

He became a very impulsive and aggressive toddler. He crawled
late, walked late, and spoke late. I waited patiently for him to do
things in his own time. Once he started working on things he always
caught on quickly. Such a smart little guy. Something just always
seemed a little off, though. He preferred to go off and play by
himself rather than play with his friends. When he did play with
them it ALWAYS ended with a physical fight. He often shoved other
kids for what seemed like no reason at all. I really began to wonder
if he'd ever learn to be empathetic. He didn't seem to care AT ALL
they he'd hurt other kids/people/animals. He really had an awful
temper and it didn't take much to set it off.

Eventually I started to think more objectively about this, and
started researching and talking to people. It turns out, Jonas has
Sensory Processing Disorder, which is a neurological disorder
where he doesn't receive and process sensory input in the same
way the most of us do. This often leads to a child "acting out"
because he needs/must avoid certain feelings, noises, smells, etc.
Jonas isn't a mean child, he's just a child who is dealing with a lot
more than most kids, so he needs more help.
It was surprisingly hard for me to except that my child wasn't
neuro-typical. It felt like failure. As much as he does have issues
that he needs help with, there is nothing "wrong" with him. I work
hard to not use language that reflects that mentality, but it's hard
because so much of the language used to refer to neuro-diversity
is very negative.



Here's Jonas hiding in a turtle to keep away from the other kids and noises.



Here's a very commen scene.  Jonas holding his ears to block out noise. 



And again.



Sometimes Lavinia gets in on the act.



Jonas being nervous in a crowd.



Jonas being angry in a crowd.



Haircuts are never fun.



So, there ya have it.

Wednesday, January 23, 2008

America's Next Top Model

Obviously I hope not, but she does have a flare for drama and knows how to strike a pose.  She's fierce.














I can't imagine where she's learned this.